Yep, we’re still here. Even while some parts of the country have reopened, many of us still find ourselves working from home, and many are facing the reality of the school year starting up as the last one ended, with distance learning. We are still facing uncertainties around health, and jobs, and just life in general. There are still many, many days when this “new normal” doesn’t feel very normal at all.
But one thing many of us have gotten better with during this unusual time is finding ways to connect that we hadn’t thought of, or used sparingly before. Grandparents are scheduling Zoom meeting with their grandkids. Virtual happy hours are connecting groups of friends that haven’t had an actual in-person happy hour in years. We can’t see as many people as we used to, but we are “seeing” some people we maybe wouldn’t have thought to connect with if things were “normal.”
And there are some opportunities to connect that have been expanded with the ability to gather in-person taken away. An example? How about our Swing for a Cure program and auction.
In a normal year, the Swing for a Cure program and auction takes place after a day of golf and a post-round dinner. Participants hear about the work our Chapter does to support people with ALS, as well as the continuing work to search for treatments, and a cure. It is an emotional and inspiring event that has an impact on everyone in attendance. This year, we won’t be gathering in-person to hear those stories, but because we aren’t limited by the size of a ballroom, we can bring this message to everyone.
So we are inviting everyone to join us on our Facebook page on Thursday, August 20, at 6 p.m., to learn about the work our Chapter does every day in support of people with ALS. You’ll hear from a family we serve about the immediate needs of a person living with ALS, how we are facing the challenges presented by COVID-19, and how you can be part of making a difference. The event will be emceed by Todd “That One Guy” Thomas, In-game emcee for the St. Louis Cardinals.
Likewise, the Swing for a Cure auction will be entirely virtual this year—both before and after the virtual program. Bidding starts Monday, August 17, at 6 p.m. and goes until Friday, August 21, at 6 p.m. There is no fee to sign up and you can register now, just register your cell phone number with us and you’ll be all set. If you have any problems registering, please contact Sarah at firstname.lastname@example.org or 314-432-7257 ext. 225.
What will you find to bid on? You can see for yourself here, but we have some great packages at some great courses for the golfers out there, as well as some cool experiences at some exciting St. Louis attractions. Foodies will find plenty to wet their appetites, with some great options to wash all that tasty food down with as well. You’ll also find some great sports memorabilia that would look great on any fan’s wall. Check it out and see if there is something for you, all in support of the goal of creating a world without ALS.
Sure, we are all hoping for the day when things seem “normal” again. But we remember for people with ALS, “normal” means a fight with a disease the daily robs them of the ability to walk, talk, eat, and even breathe on their own. ALS does not stop, and neither do we in our work to help people with ALS live their lives to fullest. We can’t wait to aid in the search for new treatments, and a cure. Thank you for all you do to support people with ALS in our community, even when your life is not “normal.”