Five Years Later—The Ice Bucket Challenge and YOU!

Let’s not kid ourselves, we can all use help with our memory from time to time. Maybe it’s a prompt like “where did you have it last?” or “Don’t forget Aunt Sally’s birthday is coming up.” Likewise, it can be hard to find the time to sit back and remember “that time when….” We are … Continue reading Five Years Later—The Ice Bucket Challenge and YOU!

The Ice Bucket Challenge—Looking Back to Look Forward

We’ve spent some time here and on social media over the last couple of months looking back at the Ice Bucket Challenge. The occasion, of course, was the fifth anniversary of the Challenge, and the chance to remember and recognize some of the people, companies and organizations who took part in the Challenge and have … Continue reading The Ice Bucket Challenge—Looking Back to Look Forward

Remembering Pat Quinn, and how “Everything can Change in an Instant”

Less than a week before Thanksgiving, Pat Quinn, co-founder of the ALS Ice Bucket Challenge, passed away from the disease. His passing follows that of the other Ice Bucket Challenge co-founder Pete Frates, who passed away in December 2019. It might be tempting to think of Pat’s passing as just another example of how difficult … Continue reading Remembering Pat Quinn, and how “Everything can Change in an Instant”

Five Years Later—Dr. Hayat Remembers the Ice Bucket Challenge

Five years ago, the ALS Ice Bucket Challenge was soaking the world and bringing unprecedented attention to ALS. Last week on ALS Connect, we looked back on some of the relationships with corporate partners the Ice Bucket Challenge started or grew for the ALS Association St. Louis Regional Chapter. But for those already on the … Continue reading Five Years Later—Dr. Hayat Remembers the Ice Bucket Challenge

Five Years Later—The Ice Bucket Challenge & Corporate Partners

It was the summer of 2014, and in St. Louis it was hot—nothing unusual about that. What was unusual was that people from all walks of life were pouring buckets of ice all over their heads. And not just to cool down, but for a cause. And it wasn’t just happening in St. Louis, but … Continue reading Five Years Later—The Ice Bucket Challenge & Corporate Partners

ALS Research—The Pace of Discover Is on the Rise

From the outside, research can seem like an endless process. As much as we all yearn for the “AH HA!” moment of discovery, more often than not the gains from any sort of research are incremental. Not so much finding a needle in a haystack as a slow, methodical, documented labeling of this piece of … Continue reading ALS Research—The Pace of Discover Is on the Rise

Thanks for Stopping By—Our 200th Post on ALS Connect

We admit, it snuck up on us. We have been posting here at ALS Connect since 2016, and it didn’t really occur to us to check in on how many posts that was. But as it turns out, this is the 200th post since we started back then. So it seemed appropriate to take a … Continue reading Thanks for Stopping By—Our 200th Post on ALS Connect

“I chose to use my situation as motivation…”—Pattie Hamlin Honored with ALS Association Hero Award

Like many people, Pattie Hamlin took part in the ALS Ice Bucket Challenge in 2014. And like many people, she did it in support of the cause but without a deep connection to the disease. But that all changed just a few years later. Pattie Hamlin was diagnosed with ALS in 2016, but she did … Continue reading “I chose to use my situation as motivation…”—Pattie Hamlin Honored with ALS Association Hero Award

It Takes All of Us—ALS Awareness Month

You’d be forgiven by most if you admitted you can’t keep up. There are awareness months, weeks or days for so many things. It’s not that it is a bad thing, it’s just that it is it so much. And yet here we are again, reminding you that May is ALS Awareness Month. Why? And … Continue reading It Takes All of Us—ALS Awareness Month

Every August Until a Cure

What followed from the largest viral social media movement of all time was not just news feeds packed with ice bucket challenge videos, but real and meaningful impact for people with ALS – and for researchers searching for treatments and a cure. The effects of the ALS Ice Bucket Challenge continue to be felt in the ALS community