Sometimes getting the help you need starts with figuring out what help is out there. This is never more true that when you are dealing with a government program, like Medicare. What are the resources? Are you eligible? How do you apply? How do you know what information is reliable?
Now, for people with ALS and their families, there is a reliable, trusted resource they can turn to, free of charge. In partnership with Patient Advocate Foundation, the ALS Association has recently introduced a new resource for the ALS community: The ALS Medicare Resource Line.
Continue reading ALS Medicare Resource Line—Help with Getting the Help You Need
As 2020 begins in earnest with the first full work week, we asked our Board Chair Josh Rogers to share some thoughts on the upcoming year. Here is Josh’s message for us all:
The ringing in of each new year brings with it hope. When the ball drops and fireworks fill the sky on New Year’s Eve, when we hang a new calendar on the wall and open it to January, when we walk through the front door at work on the first business day of the new year, we press the symbolic reset button on life. We put behind us the challenges and neglected resolutions of the year before and welcome with optimism the next 12 months.
Continue reading Wishing You a Hopeful New Year
It’s the time of year where you almost can’t help looking back. In a few short days 2019 will be no more. The year has been one of milestones and new beginnings for us here at the ALS Association St. Louis Regional Chapter, and while we are looking back we wanted to include you and remember what a year it’s been.
Continue reading The Year That Was—Looking Back
Thanksgiving has passed, December is here and the holiday season is suddenly in full swing. Between holiday gatherings, shopping, wrapping presents, cooking, and maybe one or two—or more—Hallmark movies, the most wonderful time of year can feel, well, mostly overwhelming. On top of it all, there seems to be a big push for donations by almost every charitable organization you’ve ever heard of.
It’s not your imagination. The reality is that the end of the year is a very important time for nonprofit organizations. Nearly a third of annual charitable giving happens in November and December, causing organizations to rely heavily on donations made during this time to fulfill their mission. When you make a year-end gift, you help nonprofits like The ALS Association provide their core services, things like caregiver relief, nutritional supplementation and equipment loan. Additionally, you could allow for additional or new services to unfold, perhaps something innovative like a robotic arm or a feeding machine. Just as importantly, you help sustain the future, allowing the organization to be positioned successfully in a new calendar year, so that all services to people with ALS remain free of charge and needs are met to the fullest extent.
Continue reading Year End Giving That Isn’t Just Impactful, But Meaningful
This week, many of us will gather with family and friends to
celebrate Thanksgiving. Traditions vary from family-to-family and by region,
but in many if not most cases, we’ll be asked to share what we are thankful for,
and for families facing the challenges of ALS, sometimes being thankful is a
While the choice on how to handle any holiday is entirely up to them, here are some thoughts on how to think about Thanksgiving during challenging times.
Continue reading Being Thankful Through Challenging Times
Among the many confounding facts about ALS is that veterans are twice as likely as the general population to develop ALS. While there is no fairness in this, those who served our country have the right to expect we as a nation will serve them in return. As we honor those who have served on Veterans Day, we wanted to take some time to explore what services veterans with ALS can access, how they can access them, and what they’ll find at the John A. Cochran VA Medical Center ALS Clinic:
Continue reading Serving Those Who Served—Services Available for a Veteran with ALS
Melissa Smith, MSOT,
OTR/L, joined our team as Associate Director of Care Services this September. Before
joining the ALS Association St. Louis Regional Chapter, Melissa spent the last
14 years working at Paraquad, most recently as the Manager of the Health and
Wellness Center. She is an Occupational Therapist and has experience working
with people with a variety of disabilities, including ALS. Here in her own
words she shares her journey as well as what occupational therapy can mean to
people with disabilities and caregivers.
Continue reading Meet Our New Associate Director of Care Services