Thanksgiving has passed, December is here and the holiday season is suddenly in full swing. Between holiday gatherings, shopping, wrapping presents, cooking, and maybe one or two—or more—Hallmark movies, the most wonderful time of year can feel, well, mostly overwhelming. On top of it all, there seems to be a big push for donations by almost every charitable organization you’ve ever heard of.
It’s not your imagination. The reality is that the end of the year is a very important time for nonprofit organizations. Nearly a third of annual charitable giving happens in November and December, causing organizations to rely heavily on donations made during this time to fulfill their mission. When you make a year-end gift, you help nonprofits like The ALS Association provide their core services, things like caregiver relief, nutritional supplementation and equipment loan. Additionally, you could allow for additional or new services to unfold, perhaps something innovative like a robotic arm or a feeding machine. Just as importantly, you help sustain the future, allowing the organization to be positioned successfully in a new calendar year, so that all services to people with ALS remain free of charge and needs are met to the fullest extent.
Continue reading Year End Giving That Isn’t Just Impactful, But Meaningful
This week, many of us will gather with family and friends to
celebrate Thanksgiving. Traditions vary from family-to-family and by region,
but in many if not most cases, we’ll be asked to share what we are thankful for,
and for families facing the challenges of ALS, sometimes being thankful is a
While the choice on how to handle any holiday is entirely up to them, here are some thoughts on how to think about Thanksgiving during challenging times.
Continue reading Being Thankful Through Challenging Times
Among the many confounding facts about ALS is that veterans are twice as likely as the general population to develop ALS. While there is no fairness in this, those who served our country have the right to expect we as a nation will serve them in return. As we honor those who have served on Veterans Day, we wanted to take some time to explore what services veterans with ALS can access, how they can access them, and what they’ll find at the John A. Cochran VA Medical Center ALS Clinic:
Continue reading Serving Those Who Served—Services Available for a Veteran with ALS
Melissa Smith, MSOT,
OTR/L, joined our team as Associate Director of Care Services this September. Before
joining the ALS Association St. Louis Regional Chapter, Melissa spent the last
14 years working at Paraquad, most recently as the Manager of the Health and
Wellness Center. She is an Occupational Therapist and has experience working
with people with a variety of disabilities, including ALS. Here in her own
words she shares her journey as well as what occupational therapy can mean to
people with disabilities and caregivers.
Continue reading Meet Our New Associate Director of Care Services
There is no getting around it, for nearly all people with
ALS shortly after the diagnosis comes the need to address home modifications.
The needed modifications could be minor at first, or the need could be
significant. But in any case the modifications will feel significant because the changes being made will not simply be
made to a house, condo or apartment, but to a home. Modifying a doorway on a house may be a straightforward
tasks, but modifying a doorway on a home could mean removing the pencil marks
and dates that show how tall children or grandchildren were when they were
There will be considerations beyond cost and functionality.
There will be emotional costs as well. After factoring all these in, you can
begin to plan for a home that makes sense for everyone. Modifications can also
make life easier and safer for caregivers and other family members.
Continue reading Home Modifications for ALS—You Don’t Have to Do It Yourself
The world today can seem like day after day of information
overload. And with good reason. Want to find a good place for dinner? Here are
45 positive reviews of that Italian place down the street, but what about those
15 negative ones? Here are 10 reasons eggs are bad for you, and 12 reasons you
should eat them every day. Which streaming service is best for you? Are you
saving enough for retirement?
And we haven’t even touched on making medical decisions. For
people with ALS, there are many well-regarded, well-informed medical
professionals to rely on for advice on traditional treatment options. But for
patients and families seeking information on alternative or “off label”
treatments, it can seem like they are on their own, left to fend for themselves
and to parse what is good information and what is spin. But that is not
entirely true. For those wanting and willing to learn more, there is ALSUntangled.
Continue reading ALSUntangled—Making Sense of Alternative ALS Treatments
The basics of “planned giving” are right there in the name:
It’s a form of charitable giving that’s planned. But the planning part, well,
sometimes it can be hard. After all, taking the time to sit down and think about
the future in any capacity–nonetheless charitable giving–often seems
intimidating. And once you begin to consider the types and forms of planned
gifts, you may find yourself even more lost than when you started.
But when you break down specific options, you might find the
world of planned giving becomes a bit less daunting and you may even be
surprised by the options that are out there. As such we wanted to explore in a
little detail the Charitable Gift Annuity, a form of giving that
has benefits for you and a non-profit of your choice.
Continue reading A Beneficial Way to Give—Charitable Gift Annuity Q&A