Sometimes getting the help you need starts with figuring out what help is out there. This is never more true that when you are dealing with a government program, like Medicare. What are the resources? Are you eligible? How do you apply? How do you know what information is reliable?
Now, for people with ALS and their families, there is a reliable, trusted resource they can turn to, free of charge. In partnership with Patient Advocate Foundation, the ALS Association has recently introduced a new resource for the ALS community: The ALS Medicare Resource Line.
Continue reading ALS Medicare Resource Line—Help with Getting the Help You Need
As 2020 begins in earnest with the first full work week, we asked our Board Chair Josh Rogers to share some thoughts on the upcoming year. Here is Josh’s message for us all:
The ringing in of each new year brings with it hope. When the ball drops and fireworks fill the sky on New Year’s Eve, when we hang a new calendar on the wall and open it to January, when we walk through the front door at work on the first business day of the new year, we press the symbolic reset button on life. We put behind us the challenges and neglected resolutions of the year before and welcome with optimism the next 12 months.
Continue reading Wishing You a Hopeful New Year
It’s the time of year where you almost can’t help looking back. In a few short days 2019 will be no more. The year has been one of milestones and new beginnings for us here at the ALS Association St. Louis Regional Chapter, and while we are looking back we wanted to include you and remember what a year it’s been.
Continue reading The Year That Was—Looking Back
The Dali Lama once remarked: “When you talk, you are only
repeating what you already know. But if you listen, you may learn something
new.” In that spirit, the national ALS Association undertook a community survey
in early 2019 to hear from the community about programs and services that
people consider important, reasons why people were not accessing some programs,
major challenges, and issues around medications. In listening to the community
about their realities, the ALS Association is better able to incorporate real
world information in to care services planning activities and to inform
priority setting, program outcomes, and program improvements.
Continue reading Listening to Learn—ALS Association Community Survey Results
First the obvious: You could do worse for a Saturday morning
than a scenic run or walk through Kimmswick, Missouri. But that’s not the only
reason the quaint, tree-lined streets along the Mississippi River will be busy
this Saturday morning. As it has since 2011, a community will gather together
in support of and in memory of one of their own. And as in 2011 and every year
since, it has continued to help support those with ALS and in the search for
new treatments, and a cure.
Continue reading Running and Walking for the Cause—and Pie
The story itself is known to even the casual baseball fan: one
of the game’s best ballplayers who had played more games in a row than anyone
else, ever, got sick with a fatal disease that forced him to retire from the
game he loved. When he retired he gave an eloquent, moving speech. Soon
thereafter people started referring to the disease he had by his name: Lou Gehrig’s
Continue reading Lou Gehrig’s Speech—80 Years Later
The Walk to Defeat ALS® is a colorful event. Team t-shirts
from nearly every color of the rainbow dot the landscape, along with hats,
shoes, signs. Color is everywhere.
But returning this year along the route, there will be an additional pop of color—a pop of color with a purpose. In 2018 The ALS Association launched Unlock ALS at Walk events to provide participants with a tangible way to recognize the real reasons they Walk to Defeat ALS. At the walks, participants select a lanyard in one of four colors to represent their connection to ALS. These colors represent:
Continue reading Unlocking ALS—One Step at a Time
- Yellow: I have ALS
- Blue: I Walk in Honor of Someone with ALS
- White: I’ve Lost Someone to ALS
- Red: I Support the Cause and Want to Defeat ALS