Holly Pinto is the owner and director of The Body Therapy Center and School of Massage, Ltd. In Swansea, Illinois. She has been practicing massage and a variety of different therapies since 1989. We are excited to have her contribute to ALS Connect as a guest blogger.
The first time I heard the word ALS it was when my father was diagnosed when he was 78 years old. Soon after his diagnosis, we figured out that the “nerve disease” that my aunt had died of was actually ALS. And just recently, I lost my niece from this horrific disease at just 40 years of age. This post is for you the caregiver and you the person LIVING with ALS.
Continue reading Practicing Relaxation with the Body Scan
Dr. Andrew Godbey is a Board Certified Neurologist and the Medical Director of the ALS clinic at Saint Francis Medical Center in Cape Girardeau, MO.
Continue reading Eight Questions with Andrew Godbey, M.D.
Today’s post is authored by Joan Sucher, who was diagnosed with ALS in early 2013. Joan and her husband, Tom – married for 46 years — have three children, Craig, Kate and Kristen, and seven grandchildren ranging in age from 14 1/2 months to 16 years. Joan insists that despite ALS, her life is “full, rich and blessed.”
Continue reading Living with ALS: Finding the meaning and the impact
By Stan Goldberg
This week’s blog post was originally published on thecaregiverspace.org.
Continue reading Understanding chronic & terminal illness: A guide for healthy people
Today, we are pleased to be joined by a wonderful ALS advocate Rob Robertson from Belleville, Ill. Rob proudly served our country in the U.S. Army for many years that included time in an elite fighting force “The Screaming Eagles.” He and his family faced many challenges over his lifetime, but nothing could have prepared […]
via ALS – How Your Life Can Change in an Instant — The Official Blog of The ALS Association
Hospice can be a very scary word to hear, especially after being diagnosed with a devastating disease like ALS. For an individual with ALS, hospice has a completely different look and feel than it does with other terminal diseases. Because hospice provides an extra layer of care and support that a family affected by ALS truly needs, it’s not uncommon for a patient with ALS to be referred to a hospice program early on in the disease process.
Continue reading Four Myths about Hospice Care
After a six-year journey with ALS riddled with highs and lows, our beloved Tammy lost her life at the age of 39. Yep, 39. You might be thinking, “man, that’s young.” You’re right. It is. Tammy left behind a family and many friends who adored her. For the ninth year, we will once again come together as Team Tammy Hardy in the Walk to Defeat ALS. This is why.
Continue reading Why We Walk to Defeat ALS: Team Tammy Hardy