As we officially enter into September, we can’t help but look back at this month and compare it to August 2014. This August was a busy month filled with events, not unlike past Augusts. While our social media pages were less inundated with videos of people taking the challenge, many families are still feeling the impact of this viral sensation. We continue to hear stories of what this means to people even three years later. Sabrina Jones is one such person and here she reflects on where she was in August 2014 and the journey her family has been on since.
Nearly three years ago, on August 4th, a peculiar news item showed up on our social media feed at The ALS Association St. Louis Regional Chapter. Someone had posted an article from Shape Magazine that described something called an “Ice Bucket Challenge,” where people across the country were dumping buckets of water on their heads and challenging three other people to do the same thing. It seemed like a fun, interesting way to raise awareness for ALS, so we shared it to our page and asked our Facebook fans, “Have any of you heard of this?” The rest of August became a blur of ice and water – it was incredible.
By Dave Van de Riet
As summertime is upon us, communities all over the country will begin to host the Walk to Defeat ALS. This annual event brings together thousands of people nationwide to walk in honor of or in memory of someone they love. But that doesn’t tell the full story as to what this Walk means. Continue reading In It For Life
Illness, including ALS, can attack without warning and can happen to anyone. No two people with ALS are living in the same situation and no two ALS illness courses will exact the same toll. But all couples, where one partner is placed in the dual roles of loving partner and personal care provider, will experience the greatest test on a marriage and that of their commitment to it. It is essential that couples continue to function as partners, and not become only patient and caregiver. Continue reading ALS Caregiving – Preserving Your Relationship with Your Partner
Welcome to The ALS Association St. Louis Regional Chapter’s new blog – ALS Connect. We’re excited to provide a space to share news, updates and other content with you, while also offering an opportunity for us to learn and interact with our friends in the ALS community.
Here you’ll find stories, resources for caregivers, local event updates, research and advocacy news, as well as details on opportunities to engage with our Chapter and supporters.
We hope that you’ll find this a place where you can express your thoughts and share your perspectives. We look forward to growing with you as we embark on this new journey. Thanks for stopping by!