Living with ALS in Rural America

In a perfect world, everyone would have equal access to healthcare resources (let’s get real, in a perfect world, ALS doesn’t even exist).   Until that time – when we live in a world without ALS – living with ALS in a rural community can be extra challenging.    According to The National Rural Health Association here are just a few reasons why:

Continue reading Living with ALS in Rural America

In It For Life

By Dave Van de Riet

As summertime is upon us, communities all over the country will begin to host the Walk to Defeat ALS.  This annual event brings together thousands of people nationwide to walk in honor of or in memory of someone they love.  But that doesn’t tell the full story as to what this Walk means. Continue reading In It For Life

ALS Caregiving – Preserving Your Relationship with Your Partner

Illness, including ALS, can attack without warning and can happen to anyone. No two people with ALS are living in the same situation and no two ALS illness courses will exact the same toll. But all couples, where one partner is placed in the dual roles of loving partner and personal care provider, will experience the greatest test on a marriage and that of their commitment to it.  It is essential that couples continue to function as partners, and not become only patient and caregiver. Continue reading ALS Caregiving – Preserving Your Relationship with Your Partner

Welcome to our blog: ALS Connect

Welcome to The ALS Association St. Louis Regional Chapter’s new blog – ALS Connect.  We’re excited to provide a space to share news, updates and other content with you, while also offering an opportunity for us to learn and interact with our friends in the ALS community.

Here you’ll find stories, resources for caregivers, local event updates, research and advocacy news, as well as details on opportunities to engage with our Chapter and supporters.

We hope that you’ll find this a place where you can express your thoughts and share your perspectives. We look forward to growing with you as we embark on this new journey.  Thanks for stopping by!