ALS Advocacy Efforts Roll On

We all know those tasks that are never done. There is always more laundry to do, same with the dishes. And sure, the lawn mowing takes a break for the colder months, but come spring the grass will be growing again. Which is not to say that all tasks that are never done are necessarily unpleasant. Taking the dog for a walk can be enjoyable for both human and canine. Pulling weeds from the garden has a certain Zen attraction for many.

ALS advocates had reason to celebrate in December 2021 with the passage and signing into law of the Accelerating Access to Critical Therapies (ACT) for ALS Act, but there has been no time to wait as 2022 moves along with many policy priorities still on the table. For ALS advocates, there is always more to do.

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Finding a Way—A Look Back at 2021

In a lot of ways, 2021 has been a roller coaster ride. For many in the ALS community and beyond, the year began on a hopeful note with COVID vaccines becoming more and more available. For a few weeks in early summer, it looked like the pandemic might be behind us. But as summer rolled on and eventually turned to fall the word “variant” entered our vocabulary is a big way, and as we near the end of December we find ourselves back in a world of uncertainty.

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