“This Is Where I Need to Be Right Now”—Virtual ALS Advocacy Day Still Makes an Impact on Congress

In the past, ALS Advocacy Day on Capitol Hill has been a frenetic affair. It almost has to be when groups of ALS Advocates from across the country descend on the Capitol with maps in hand, ready to weave the halls and go from meeting to meeting with Senators, Representatives, and staff to tell the story of people with ALS and how Congress can help. It is a fruitful, yet exhausting, day for all involved.

This year, however, the knock on a door was replaced by the ring of the phone. For the safety of all involved, people with ALS, chapter staff, and board members couldn’t travel to Washington D.C. for the day. As with much in our world today, the visits had to be done remotely.

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