Study on Mindfulness and Self-Compassion for People with ALS Offers a Path to Living Life as They Choose

Just breathe. It’s advice we’ve all been given at one time or another. Beyond the obvious physical need we all have to take in oxygen and emit carbon dioxide, the advice to “just breathe” is often a call to stop for a moment and just be aware of the act of breathing to re-center, re-focus, and re-set.

For people with ALS, such seemingly simple advice comes with its own set of emotional baggage, as ALS slowly robs a person of the ability to “just breathe.” Still, the idea behind the advice might have far reaching benefits for people with ALS in ways you might not imagine.

Continue reading Study on Mindfulness and Self-Compassion for People with ALS Offers a Path to Living Life as They Choose

It Takes All of Us—ALS Awareness Month

You’d be forgiven by most if you admitted you can’t keep up. There are awareness months, weeks or days for so many things. It’s not that it is a bad thing, it’s just that it is it so much. And yet here we are again, reminding you that May is ALS Awareness Month. Why?

And honestly, if you are a regular visitor here, you don’t really need reminding. As a part of the ALS community you are well aware of the challenges of this horrible disease. You are aware of the progress in research being made even as we all wish it would move faster. You are aware of the funding ALS advocates have been able to secure even as we all wish it could be more.

Still, ALS is categorized as a rare disease, and for a large portion of the overall population, ALS isn’t something that crosses the mind very often. Sure, they probably know about Lou Gehrig and “Lou Gehrig’s Disease,” and they probably remember the Ice Bucket Challenge and what a wild ride that was. But other than that? Like we said, it’s hard to keep up.

So it as much to remind the world as to remind ourselves that each May we work to shine a light on all people with ALS, and all the people who are working every day to find treatments, and a cure. To remind everyone that of the more than 140 active research projects around the world. To remind everyone that thanks to more than 40,000 ALS advocates, we secured millions in additional federal dollars to support that research, veterans with ALS, and to empower people with ALS to live life to the fullest.

Continue reading It Takes All of Us—ALS Awareness Month