The Fight Never Stops—ALS Advocates Push for Increased Funding from 117th Congress

Even with all the headline-grabbing stories that dominate cable news and your news feed, much of what happens in the federal government follows a predictable pattern. This seemingly mundane work of setting priorities, planning budgets, and allocating funds doesn’t tend to excite many journalists unless something goes awry, but when all is said and done this process determines how most of your tax dollars get spend, and on what.

And so it is with the annual appropriations process that provides funding for key government programs. While other flashy topics attract more attention, the ALS Association and our network of ALS advocates are working to protect and expand federal funding for ALS research and fighting for public policies that will accelerate the search for treatments, and a cure. Just this week, a “Dear Colleague” letter has begun circulating in the U.S. House of Representatives, asking members to signal their support for the funding requested in the fight against ALS.

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ALS Biomarker Research — One More Reason to Hope

The ALS Association funds millions of dollars in research every year, in a variety of scientific focus areas critical to advancing the search for treatments and a cure for ALS. In the nearly 150 years since ALS was first described in 1874, the search for new treatments and a cure has been frustratingly slow. However, the last decade has seen promising acceleration in progress, and in the last few years, five genes related to ALS have been identified. The ALS Association is currently funding a total of 169 active research projects in 16 different focus areas, and for everyone involved, critical discoveries cannot come soon enough. The promise shown in ongoing biomarker research gives reason for hope.

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