Finding a Way—A Look Back at 2021

In a lot of ways, 2021 has been a roller coaster ride. For many in the ALS community and beyond, the year began on a hopeful note with COVID vaccines becoming more and more available. For a few weeks in early summer, it looked like the pandemic might be behind us. But as summer rolled on and eventually turned to fall the word “variant” entered our vocabulary is a big way, and as we near the end of December we find ourselves back in a world of uncertainty.

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I Look Forward to Taking This Journey With You

As she moves into her new role as our president and CEO, Katie McGovern wanted to share some personal thoughts with all of you in our ALS community:

Well, here it is. The first week on the job!

To say this week, and the weeks leading up to this, have come with a mix of emotions is an understatement. While there is great excitement and energy for what is to come, there certainly isn’t a lack of nerves. I have big shoes to fill upon Maureen Barber Hill’s retirement, and there are significant goals to achieve.

While this transition has personal elements, I am acutely aware that this opportunity really isn’t about me. We, the ALS community, are at a pivotal point in our journey, embarking on our next chapter together. Throughout this chapter, I believe we will see many things unfold, resulting in transformative progress for people affected by ALS and their families.

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Hope for the New Year

As we move into 2021 in earnest we once again asked our Board Chair Josh Rogers to share some thoughts on the year ahead. Here is Josh’s message to us all:

Happy new year!

With the full year ahead of us, most of us hold terrific hope that 2021 will be an improvement over 2020.

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What a Year It Has Been

There is no doubt, 2020 will be a year not soon forgotten. We all have had our lives turned upside down in ways big and small, and we are all hoping for 2021 to turn things right-side up.

And while 2020 has been for many a year we’d be fine forgetting, there has been much worth remembering for our Chapter and the ALS community. For while 2020 has been a struggle, we are inspired by those who have struggled to overcome the obstacles in the path. And we are reminded that for people with ALS the struggle never ends. ALS does not stop for global pandemics, or for the challenges created by them.

Like so many others, when the scope of the COVID-19 pandemic became clear, our Chapter was forced to reimagine how to provide services to the community we serve. Our Care Service team worked with our partners to find new and different ways to meet the needs of people with ALS. Visits that would normally have been in person now took place over the phone or internet. Here on ALS Connect, we tried to keep you informed about how we and others in our community we meeting these challenges each and every day.

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My Upcoming Retirement—Thank You for the Last 10 Years

A personal message from our President and CEO Maureen Barber Hill:

To Our ALS Community,

I am writing to let you know that I will be retiring as President and CEO of our Chapter on Feb. 12, 2021, bringing my 10 years with this incredible organization to a close. Our Board of Directors has named my esteemed colleague Katie McGovern, who many of you know as our Development Director, as my successor, and I couldn’t be more pleased with that decision. You can read the news release here.

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