It Takes All of Us—ALS Awareness Month

You’d be forgiven by most if you admitted you can’t keep up. There are awareness months, weeks or days for so many things. It’s not that it is a bad thing, it’s just that it is it so much. And yet here we are again, reminding you that May is ALS Awareness Month. Why?

And honestly, if you are a regular visitor here, you don’t really need reminding. As a part of the ALS community you are well aware of the challenges of this horrible disease. You are aware of the progress in research being made even as we all wish it would move faster. You are aware of the funding ALS advocates have been able to secure even as we all wish it could be more.

Still, ALS is categorized as a rare disease, and for a large portion of the overall population, ALS isn’t something that crosses the mind very often. Sure, they probably know about Lou Gehrig and “Lou Gehrig’s Disease,” and they probably remember the Ice Bucket Challenge and what a wild ride that was. But other than that? Like we said, it’s hard to keep up.

So it as much to remind the world as to remind ourselves that each May we work to shine a light on all people with ALS, and all the people who are working every day to find treatments, and a cure. To remind everyone that of the more than 140 active research projects around the world. To remind everyone that thanks to more than 40,000 ALS advocates, we secured millions in additional federal dollars to support that research, veterans with ALS, and to empower people with ALS to live life to the fullest.

Continue reading It Takes All of Us—ALS Awareness Month

Winter 2022 ALS Research Round Up

We’ve talked before here about how research is incremental. How one small discovery leads to another discovery, which informs the direction of another study. But while research progress can at times seem slow, that should not be mistaken for a lack of urgency among those doing the research. In fact, the ALS Association has recently made the case to an important arm of the U.S. government that it wants their help in moving ALS research forward even faster.

Continue reading Winter 2022 ALS Research Round Up