We all know those tasks that are never done. There is always more laundry to do, same with the dishes. And sure, the lawn mowing takes a break for the colder months, but come spring the grass will be growing again. Which is not to say that all tasks that are never done are necessarily unpleasant. Taking the dog for a walk can be enjoyable for both human and canine. Pulling weeds from the garden has a certain Zen attraction for many.
ALS advocates had reason to celebrate in December 2021 with the passage and signing into law of the Accelerating Access to Critical Therapies (ACT) for ALS Act, but there has been no time to wait as 2022 moves along with many policy priorities still on the table. For ALS advocates, there is always more to do.
Continue reading ALS Advocacy Efforts Roll On
Even with all the headline-grabbing stories that dominate cable news and your news feed, much of what happens in the federal government follows a predictable pattern. This seemingly mundane work of setting priorities, planning budgets, and allocating funds doesn’t tend to excite many journalists unless something goes awry, but when all is said and done this process determines how most of your tax dollars get spend, and on what.
And so it is with the annual appropriations process that provides funding for key government programs. While other flashy topics attract more attention, the ALS Association and our network of ALS advocates are working to protect and expand federal funding for ALS research and fighting for public policies that will accelerate the search for treatments, and a cure. Just this week, a “Dear Colleague” letter has begun circulating in the U.S. House of Representatives, asking members to signal their support for the funding requested in the fight against ALS.
Continue reading The Fight Never Stops—ALS Advocates Push for Increased Funding from 117th Congress