The Fight Never Stops—ALS Advocates Push for Increased Funding from 117th Congress

Even with all the headline-grabbing stories that dominate cable news and your news feed, much of what happens in the federal government follows a predictable pattern. This seemingly mundane work of setting priorities, planning budgets, and allocating funds doesn’t tend to excite many journalists unless something goes awry, but when all is said and done this process determines how most of your tax dollars get spend, and on what.

And so it is with the annual appropriations process that provides funding for key government programs. While other flashy topics attract more attention, the ALS Association and our network of ALS advocates are working to protect and expand federal funding for ALS research and fighting for public policies that will accelerate the search for treatments, and a cure. Just this week, a “Dear Colleague” letter has begun circulating in the U.S. House of Representatives, asking members to signal their support for the funding requested in the fight against ALS.

Continue reading The Fight Never Stops—ALS Advocates Push for Increased Funding from 117th Congress

A Virtual Story for a Virtual Run—How We Can Still Connect When We Are Apart

It seems like it was long ago, but in reality it’s only been a couple of months or so since things were “normal” for most of us. Schools were in session, most of us were actually “going” to work in person, and we were all waiting for spring to arrive.

And then everything got turned upside down. Event after event was either canceled, or postponed, or changed in some way to ensure the safety of all. We’ve all done what we needed to do.

And just like that much that was to be in-person became virtual, including the annual Jim Schoemehl 5K Run, being held this Saturday. The run will still be held—and you can still participate—but it will all be held virtually.

Continue reading A Virtual Story for a Virtual Run—How We Can Still Connect When We Are Apart