We are so excited to be back IN PERSON for the St. Louis Walk to Defeat ALS this Saturday (June 25, 2022) in Forest Park. It has been three long years since we have been able to gather together as a community for the St. Louis Walk, and the chance to see so many old and new friends in one place has us all counting down the hours.
Among the most important parts of a Walk to Defeat ALS day is the memorial banner, which lists the names of each person our Chapter served who we have lost to ALS, and anyone who is being walked in memory of. For the last two years when we couldn’t gather in person, we created a virtual memorial banner and posted it to our Walk to Defeat ALS Facebook page. Even though we will be back in Forest Park this year, we’ve updated the virtual banner to create a lasting memorial to those we have lost to ALS that the ALS Association St. Louis Regional Chapter served during their fight. We wanted to share it with you here as well.
Continue reading In Memoriam: Remembering Those We’ve Lost to ALS
Over her years as a volunteer with the ALS Association St. Louis Regional Chapter, Diana Wunning has seen—and done—just about everything. She’s been volunteering long enough to remember the days when mailings were all done in-house and by hand. She recalls sorting postal tray after postal tray of envelopes by ZIP code. She recalls VERY early mornings at the Walk to Defeat ALS when she’d be out putting up signs to direct people to the right spot. Pretty much anything that needed to done, Diana has done it some point along the way. In fact, she recalls not just volunteering, but managing other volunteers.
“In the years before we had a volunteer coordinator I’d be there very early and help oversee the volunteers and make sure everyone was where they needed to be day of Walk,” she says. “You name it, I’ve pretty much done it.”
Continue reading “You name it, I’ve pretty much done it”—Appreciating Volunteer Diana Wunning for Volunteer Appreciation Month
We admit, it snuck up on us. We have been posting here at ALS Connect since 2016, and it didn’t really occur to us to check in on how many posts that was. But as it turns out, this is the 200th post since we started back then. So it seemed appropriate to take a quick look back before we start into the next 200.
Continue reading Thanks for Stopping By—Our 200th Post on ALS Connect
Those who have experienced a Walk to Defeat ALS can attest to the sense of community everyone involved feels. The feeling is different for each person, and perhaps different when we gather in-person or when we Walk Your Way as we are again this year, but the act of walking in support of the cause always seems to resonate and remind us all that we are not alone on this journey.
Among the most important parts of a Walk to Defeat ALS day is the memorial banner, which lists the names of each person our Chapter served who we have lost to ALS, and anyone who is being walked in memory of. Last year when we couldn’t gather in person, we decided to create a virtual memorial banner and posted it to our Walk to Defeat ALS Facebook page. As we are once again walking in the way that makes the most sense for you this year, we’ve created another virtual banner for 2021, and wanted to share it with you here as well.
Continue reading In Memoriam: Remembering Those We’ve Lost to ALS
Today’s blog post is the first of in a recurring series from our friend Scott Liniger, who was an ALS patient caregiver for his partner Tammy Hardy for six years. In his series “Dispatches From a Former Caregiver” Scott hopes to explore the parts of his and Tammy’s story that tend to the, shall we say, more irreverent side of their journey.
Tammy Hardy lost her battle with ALS in 2008. She was 39 years old. She was diagnosed with ALS six years earlier, at the age of 33. After her diagnosis, she had a cadre of caregivers, including her sisters and brother, her parents, her partner Scott Liniger, and his parents and family. Since her death, Scott has been a member of the St. Louis Walk To Defeat ALS committee, and participates and fund raises for Walk Team Tammy Hardy, along with Tam’s sisters, Kelly and Keri (and lots of family and friends).
Continue reading Dispatches From a Former Caregiver—Have You Heard Venice has A LOT of Canals?
Like many people, Pattie Hamlin took part in the ALS Ice Bucket Challenge in 2014. And like many people, she did it in support of the cause but without a deep connection to the disease. But that all changed just a few years later.
Pattie Hamlin was diagnosed with ALS in 2016, but she did not let that slow her down.
“Shortly after being diagnosed I began researching and discovered how devastating this disease really is,” Pattie says. “In those early months I struggled emotionally with the outlook that was now my reality. Eventually, I chose to use my situation as motivation to try and make a difference for the future of ALS.”
For her tireless efforts in support of our Chapter and the ALS Association as an ALS advocate, fundraiser, and ambassador, Pattie was honored with the Hero Award virtually during the ALS Association 2021 Leadership Conference in February.
Continue reading “I chose to use my situation as motivation…”—Pattie Hamlin Honored with ALS Association Hero Award
We are a little bit more than a week away from the 2020 St. Louis Walk to Defeat ALS, and just a couple of days away from Father’s Day as well. Because of COVID-19, both will be different than they have been in years past, but both are still important.
As you have heard, for the safety of the people with ALS we serve, their families, our staff and supporters, the 2020 St. Louis Walk to Defeat ALS will not occur in Forest Park on June 27. We will still be walking to defeat ALS, but we will all be walking where it safe for all involved: down your street, in your neighborhood park, around your coffee table, just about anywhere you can think of. This year we are asking you to make the Walk your own.
And while we won’t all be gathered together physically this year, we will gather digitally. Starting at 9:45 a.m. on the Walk to Defeat ALS Facebook page, we’ll be sharing content about this year’s Walk and how all of you are still making a difference for people with ALS and their families. We want to see how you are “Walking Your Way” as well, so when you post about your Walk on social media be sure to use the #ALSWalkYourWay hashtag so we can share it with others.
Continue reading Still Walking for a World without ALS, Even in a World with COVID-19
By Dave Van de Riet
As summertime is upon us, communities all over the country will begin to host the Walk to Defeat ALS. This annual event brings together thousands of people nationwide to walk in honor of or in memory of someone they love. But that doesn’t tell the full story as to what this Walk means. Continue reading In It For Life